So I met with the Endocronologist for routine follow up. My IGF-1 level came back as 330.
This was a little disconcerting since the lowest I have been was 320 and I was hoping it would stay there.
Anyway, she said that two things could happen.
#1. It could just level off and remain at 330ish.
#2. It could steadily rise until Acromegaly becomes a problem again.
I got the impression that she thought #2 was more likely since she said, "What would stop it?"
The first time around it started from nothing and took years to develop into a tumor, so now a shattered bunch of cells are still kicking around, bringing my level up just a bit beyond the ideal and they may multiply and divide until new action is needed.
We'll see.
Obliterating a tumor doesn't mean another will form from a single leftover cell. A cell can still produce HGH without necessarily growing and dividing itself.
Also, IGF 1 levels fluctuate naturally (a little bit) so maybe I just got an upswing.
Or maybe I'm just a diehard optimist!
Whatever. I feel good and the levels would be normal for a 29 year old. (I'm 34)
There will be an update in about 8 months.
Later skaters.
Just came across your story. I was amazed by the fact that you diagnosed your self correctly. I didn't have a clue what was going on, even when I was referred to an endo-something (about 13 years ago). Just as you I'm hovering just above ideal levels of IGF-1 (329, I'm 39 years). But I've been on medication since the operation to supress some residual GH overproduction. I've lost track of all the different combinations of treatments. I hope your levels come back down by themselves. If not, there are plenty of good treatments.
ReplyDeleteKind regards,
Floris, Netherlands